UK Biobank Ethics and Governance Council
An independent council
funded by the Wellcome
Trust and Medical
Research Council
Meetings and reports

Commissioned reports

The Council has commissioned a number of reports on matters it considers pertinent to its remit. Links to the full reports can be found below, prefaced with an explanation as to why the studies were commissioned. The Council welcomes your thoughts on these reports. Comments should be sent to EGCinfo@wellcome.ac.uk

Public attitudes to biobanks and related ethics and governance issues. Author: Joanne Sumner (2 January 2007)

Access to the UK Biobank Resource: Concepts of the Public Interest and the Public Good. Authors: Benjamin Capps, Alastair V. Campbell and Ruud ter Meulen (22 April 2008)

Public attitudes to third party access and benefit sharing: their application to UK Biobank (Final Report). Authors: Andrew Webster, Nik Brown, Conor Douglas, Graham Lewis, Jane Kaye, Richard Tutton, Nick Williams (June 2008).

Access to the UK Biobank Resource: Advising on the public interest and the public good (3 June 2008). This is a living document developed by the Council in response to the commissioned report on the concepts of the public interest and the public good. This document will evolve as the EGC develops more knowledge and experience of what these terms mean in the context of UK Biobank.

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Council meeting agendas and reports

The agenda and report of any given meeting is approved at the subsequent meeting. The documents will be made available shortly after the approval meeting date.

If you would like a hard copy of the EGC Annual Review 2007 please contact the Council Secretary, Adrienne, at EGCinfo@wellcome.ac.uk.

Meeting title Date Related documents
EGC meeting 1 (including induction) 29/11/04 30/11/04 EGC1 agenda and report  (pdf)
EGC meeting 2 14/02/05 EGC2 agenda and report  (pdf)
EGC meeting 3 04/04/05 EGC3 agenda and report (pdf)
EGC meeting 4 06/06/05 EGC4 agenda and report (pdf)
EGC meeting 5 19/09/05 EGC5 agenda and report (pdf)
EGC public presentation and discussion (London) 28/11/05 Public meeting report (pdf)
EGC meeting 6 29/11/05 EGC6 agenda and report (pdf)
EGC annual review 2004 - 2005 EGC annual review 2004 - 2005  (pdf)
EGC meeting 7 13/03/06 EGC7 agenda and report  (pdf)
EGC meeting 8 12/06/06 EGC8 agenda and report  (pdf)
EGC meeting 9 25/09/06 EGC9 agenda and report (pdf)
EGC annual review 2006 EGC annual review 2006 (pdf)
EGC meeting 10 16/01/07 EGC10 agenda and report  (pdf), EGC10 summary of decisions  (pdf)
EGC meeting 11 12/03/07 EGC11 agenda and report (pdf), EGC11 summary of decisions (pdf)
EGC public presentation and discussion (Manchester) 11/06/07 June 2007 public meeting report
EGC meeting 12 12/06/07 EGC12 agenda and report (pdf), EGC12 summary of decisions (pdf)
EGC meeting 13 01/11/07 EGC13 agenda and report (pdf), EGC13 summary of decisions (pdf)
EGC public presentation and discussion (Oxford) 03/12/07 December 2007 public meeting report
EGC annual review 2007 EGC annual review 2007 (pdf)
EGC meeting 14 17/03/08 EGC14 agenda and report (pdf), EGC14 summary of decisions (pdf)
EGC meeting 15 09/06/08 EGC15 agenda and report (pdf), EGC15 summary of decisions (pdf)
EGC public presentation and discussion (Edinburgh) 01/07/08 July 2008 public meeting report
EGC meeting 16 15/09/08 EGC16 agenda and report (pdf), EGC16 summary of decisions (pdf)
EGC meeting 17 08/12/08 Not yet available
EGC public presentation and discussion (Cardiff) 12/02/09 Not yet available
EGC meeting 18 16/03/09 Not yet available
EGC meeting 19 08/06/09 Not yet available